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BEGIN:VEVENT
DTSTART;TZID=Asia/Kuala_Lumpur:20210619T140000
DTEND;TZID=Asia/Kuala_Lumpur:20210619T153000
DTSTAMP:20260416T102328
CREATED:20210611T082946Z
LAST-MODIFIED:20221229T094630Z
UID:2655-1624111200-1624116600@mndmalaysia.org
SUMMARY:(PM-Session for PALS & CALS) - Topic: NIV & Sleep in MND
DESCRIPTION:>> PM-Session for PALS & CALS >> Registration >> LIVE WEBINAR on 5th-Series (19th-JUNE’2021) @ 2:00pm to 3:30pm\n“MND BEYOND BORDERS – the educational series”\n\n-All you want to know about “Motor Neurone Disease (MND)-\nTopic: NIV & Sleep in MND\n(PM-Session for PALS & CALS) – Topic: NIV & Sleep in MND\nOn 19th-June’2021 (Saturday)\, our afternoon PM-Session (2:00pm to 3:30pm) for PALS & CALS (Patients & Carers) topic of the day is “Non-Invasive Ventilation (NIV) & Sleep in MND”; by 2 of our speakers from Malaysia\, Dr. Ian and Dr. Raymund.  REGISTER NOW to join this 5th-Series LIVE WEBINAR of “MND BEYOND BORDERS”.\nDr. Ian is a Pulmonologist & Internal Medicine Consultant at UMMC\, Malaysia.  His field of interests is on Non-Invasive Ventilation and Interventional Pulmonology.\nDr. Raymund is a Pulmonologist & Internal Medicine Consultant at Hospital Seremban\, Malaysia.  He had a keen interest in Adult Sleep Science.\n  \nThis is an afternoon PM-Session webinar for PALS & CALS and it’s FREE-to-Join with registration\, please refer to the required session details below for your registration.\n \nAny enquiries about our “MND BEYOND BORDERS – the educational series”\, please email us >> mndmalaysia.edu@gmail.com <<\n \n \n\nTo REGISTER for PM-Session for “PALS & CALS” @ 2:00pm – 3:30pm (Malaysia Time) please click on the picture-link below to register.\n>> To Register for AM-Session for HealthCare Provide (HCP) @ 10pm – 12pm\, please CLICK-HERE << \n \n \n\n*FREE-to-join-Webinar-with-Registration*\n************************************************************************************************************************************ \n\nREGISTRATION for afternoon PM-Session for PALS & CALS\n \n\n1) PM-SESSION (for PALS & CALS)\n \n\nDate: 19th-June-2021 (Saturday)\n \n\nMalaysia-Time 2:00pm to 3:30pm\n \n\n*CLICK PICTURE TO REGISTER*\n(Afternoon) PM-Session for PALS & CALS\n  \n\n  \n************************************************************************************************************************************ \n  \n\nORGANIZED BY:\n\n\n\nMND Malaysia\n\n\n\n\n\nTTSH Home Ventilation Respiratory Support Service – HVRSS\n\n\n\n\n\nYayasan ALS Indonesia\n\n\n  \n\n************************************************************************************************************************************ \n\nTO KNOW WHAT MOTOR NEURONE DISEASE (MND) IS….. CLICK HERE\nwe are MND Malaysia
URL:https://mndmalaysia.org/en_gb/event/pm-session-for-pals-cals-topic-niv-sleep-in-mnd/
LOCATION:Zoom
CATEGORIES:Awareness,Charity,Educational,Forum,Fundraising
ATTACH;FMTTYPE=image/png:https://mndmalaysia.org/wp-content/uploads/2021/06/5.-MNDBB-PALS-CALS-19.6.21.png
ORGANIZER;CN="MND Malaysia":MAILTO:mndmalaysia@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kuala_Lumpur:20210619T100000
DTEND;TZID=Asia/Kuala_Lumpur:20210619T120000
DTSTAMP:20260416T102328
CREATED:20210611T082527Z
LAST-MODIFIED:20221229T094933Z
UID:2635-1624096800-1624104000@mndmalaysia.org
SUMMARY:(AM-Session for HealthCare Professionals) - Topic: Suffering in patients with MND
DESCRIPTION:>> AM-Session for HealthCare Professional (HCP) >> Registration >> LIVE WEBINAR on 5th-Series (19th-JUNE’2021) @ 10:00am to 12:00pm\n“MND BEYOND BORDERS – the educational series”\n\n-All you want to know about “Motor Neurone Disease (MND)-\n  \nTopic: Suffering in patients with MND\n(AM-Session for HealthCare Professionals) – Topic: Suffering in patients with MND\nOn 19th-June’2021 (Saturday)\, our morning AM-Session (10:00am to 12:00pm) topic of the day is “SUFFERING IN PATIENTS WITH MND”; by our speaker from Malaysia\, Associate Proffesor Dr. Tan Seng Beng.  REGISTER NOW to join this 5th-Series LIVE WEBINAR of “MND BEYOND BORDERS”.\nProf. Tan is a Palliative Care Physician at University Malaya Medical Centre (UMMC)\, Malaysia.  His work-mindfulness in Palliative Care\, is world renowned.  He has numerous local & international journals in his name.  Suffering in Palliative Care is an integral part of the illness experience.  We are fortunate to have Prof. Tan deliver a sharing on suffering in MND patients.\n  \nThis is a morning AM-Session webinar for HealthCare Provider (HCP) and it’s FREE-to-Join with registration\, please refer to the required session details below for your registration.\n \nAny enquiries about our “MND BEYOND BORDERS – the educational series”\, please email us >> mndmalaysia.edu@gmail.com <<\n \n \n\nTo REGISTER for AM-Session for “HealthCare Profesional (HCP) @ 10:00am – 12:00pm (Malaysia Time) please click on the picture-link below to register.\n>> To Register for PM-Session for PALS & CALS @ 2:00pm – 3:30pm\, please CLICK-HERE << \n \n \n\n*FREE-to-join-Webinar-with-Registration*\n************************************************************************************************************************************ \n\nREGISTRATION for morning AM-Session for HealthCare Professional (HCP)\n \n\n1) AM-SESSION (for HCP – HealthCare Professionals)\n \n\nDate: 19th-June-2021 (Saturday)\n \n\nMalaysia-Time 10:00am to 12:00pm\n \n\n*CLICK PICTURE TO REGISTER*\n  \n(Morning) AM-Session for HealthCare Professional (HCP) @ 10am-12pm\n  \n\n  \n************************************************************************************************************************************ \n  \n\nORGANIZED BY:\n\n\n\nMND Malaysia\n\n\n\n\n\nTTSH Home Ventilation Respiratory Support Service – HVRSS\n\n\n\n\n\n\n\nYayasan ALS Indonesia\n\n\n  \n\n************************************************************************************************************************************ \n  \n\nTO KNOW WHAT MOTOR NEURONE DISEASE (MND) IS….. CLICK HERE\nwe are MND Malaysia
URL:https://mndmalaysia.org/en_gb/event/am-session-for-healthcare-professionals-topic-suffering-in-patients-with-mnd/
LOCATION:Zoom
CATEGORIES:Awareness,Educational,Forum,Fundraising,Training,Workshop
ATTACH;FMTTYPE=image/png:https://mndmalaysia.org/wp-content/uploads/2021/06/5.-MNDBB-HCP-19.6.21.png
ORGANIZER;CN="MND Malaysia":MAILTO:mndmalaysia@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kuala_Lumpur:20210522T100000
DTEND;TZID=Asia/Kuala_Lumpur:20210522T163000
DTSTAMP:20260416T102328
CREATED:20210429T150036Z
LAST-MODIFIED:20221229T095609Z
UID:2589-1621677600-1621701000@mndmalaysia.org
SUMMARY:SECRETION MANAGEMENT (4th-Series MNDBB)
DESCRIPTION:>> Registration >> LIVE WEBINAR @ 4th-Series (22nd-MAY’2021)\n“MND BEYOND BORDERS – the educational series”\n\n-All you want to know about “Motor Neurone Disease (MND)-\n  \nTopic: SECRETION MANAGEMENT\n  \nOn 22nd-May’2021 (Saturday)\, our topic of the day is “SECRETION MANAGEMENT”; by our speaker from Singapore\, Mr. Jayachandran Balachandran.  REGISTER NOW to join this 4th-Series LIVE WEBINAR of “MND BEYOND BORDERS”.\nMr. Jayachandran Balachandran obtained his Master of Physiotherapy (Cardiorespiratory Physiotherapy) in 2010 from University of Melbourne and subsequently the Advanced Respiratory Care Course in 2017 from Tan Tock Seng Hospital Singapore.  He has 20 years of experience in healthcare as a critical care physiotherapist and clinical educator.  We are honoured to have this opportunity to learn from his experience regarding managing secretions in patients with MND.\n  \nThis webinar are scheduled into 2 separate sessions with required registration to participate\, the morning AM-Session (session-1) and the afternoon PM-Session (session-2); the AM-Session for the HealthCare Professionals\, and the PM-Session for the PALS & CALS – People with ALS & Caregivers for People with ALS. This webinar is FREE-to-Join with registration\, please refer to the required session details below for your registration.\n \nAny enquiries about our “MND BEYOND BORDERS – the educational series”\, please email us >> mndmalaysia.edu@gmail.com <<\n \n \n\nTo REGISTER\, refer to below details on either Session (1) One – Morning or Session (2) Two – Afternoon\, and click on the picture-link to our registration form.\n \n \n\n*FREE-to-join-Webinar-with-Registration*\n************************************************************************************************************************************ \n\nREGISTRATION for SESSION (1) ONE – MORNING\n \n\n1) AM-SESSION (for HCP – HealthCare Professionals)\n \n\nDate: 22nd-May-2021 (Saturday)\n \n\nMalaysia-Time 10:00am to 12:30pm\n \n\n*CLICK PICTURE TO REGISTER*\n(Morning) AM-Session for HealthCare Provider (HCP)\n  \n\n************************************************************************************************************************************ \nREGISTRATION for SESSION (2) TWO – AFTERNOON\n \n\n2) PM-SESSION (for PALS & CALS – People with ALS & CareGivers for People with ALS)\n \n\nDate: 22nd-May-2021 (Saturday)\n \n\nMalaysia-Time 2:00pm to 4:30pm\n \n\n*CLICK PICTURE TO REGISTER*\n(Afternoon) PM-Session for Patients & Carers (PALS & CALS)\n************************************************************************************************************************************ \n  \n\nORGANIZED BY:\n\n\n\nMND Malaysia\n\n\n\n\n\nTTSH Home Ventilation Respiratory Support Service – HVRSS\n\n\n\n\n\nYayasan ALS Indonesia\n\n\n  \n\n************************************************************************************************************************************ \n  \n\nTO KNOW WHAT MOTOR NEURONE DISEASE (MND) IS….. CLICK HERE\nwe are MND Malaysia
URL:https://mndmalaysia.org/en_gb/event/secretion-management-4th-series-mndbb/
LOCATION:Zoom
CATEGORIES:Awareness,Charity,Educational,Training
ATTACH;FMTTYPE=image/png:https://mndmalaysia.org/wp-content/uploads/2021/04/Feature-Image-4-4th-Series-22May2021-1.png
ORGANIZER;CN="MND Malaysia":MAILTO:mndmalaysia@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kuala_Lumpur:20210417T100000
DTEND;TZID=Asia/Kuala_Lumpur:20210417T163000
DTSTAMP:20260416T102328
CREATED:20210329T000057Z
LAST-MODIFIED:20221229T095945Z
UID:2501-1618653600-1618677000@mndmalaysia.org
SUMMARY:LIVE WEBINAR – 3rd Series “MND BEYOND BORDERS – the educational series"
DESCRIPTION:>> Registration >> LIVE WEBINAR @ 3nd Series (17th-April’2021)\n“MND BEYOND BORDERS – the educational series”\n \n\n-All you want to know about “Motor Neurone Disease (MND)-\n  \n\n  \n  \n\n\n\n3rd Series “MND Beyond Borders” – the educational series\n\n\n  \n\nJoin us this 17th-April’2021 (Saturday)\, in our 3rd-Series LIVE WEBINAR of “MND BEYOND BORDERS” educational series\, covering on –All You Want To Know About Motor Neurone Disease-.\n \n\nIn this 3rd-Series\, our speaker Prof. Dr. Nortina Shahrizaila will be covering the topic of MND – A Neurologist’s Perspective. Prof. Dr. Nortina Shahrizaila is the Professor of Neurology at University of Malaya and Senior Consultant Neurologist at University Malaya Medical Centre Malaysia. Her subspecialty clinical and research interests are in the field of neuromuscular disorders\, in particular peripheral nerve disorders\, amyotrophic lateral sclerosis and clinical neurophysiology. She is very involved in caring for patients with MND and also one of the pioneers in establishing the multidisciplinary team for patients with MND in UMMC. In this webinar\, she will expound on MND/ALS from a neurologist’s perspective.\n \n\nThis webinar are scheduled into 2 separate sessions with required registration to participate\, the morning AM-Session (session-1) and the afternoon PM-Session (session-2); the AM-Session for the HealthCare Professionals\, and the PM-Session for the PALS & CALS – People with ALS & Caregivers for People with ALS. This webinar is FREE-to-Join with registration\, please refer to the required session details below for your registration.\n \n\nAny enquiries about our “MND BEYOND BORDERS – the educational series”\, please email us >> mndmalaysia.edu@gmail.com <<\n \n\nTo REGISTER\, refer to below details on either Session (1) One – Morning or Session (2) Two – Afternoon\, and click on the picture-link to our registration form.\n \n\n*NOW-U-SEE-ME-NOW-U-REGISTER (~) REGISTRATION CLOSING DATE IS 15th-APRIL-2021*\n  \n\n************************************************************************************************************************************ \n  \n\nREGISTRATION for SESSION (1) ONE – MORNING\n \n\n1) AM-SESSION (for HCP – HealthCare Professionals)\n \n\nDate: 17th-April-2021 (Saturday)\n \n\nMalaysia-Time 10:00am to 12:30pm\n \n\n*CLICK PICTURE TO REGISTER*\n  \n\n\n\nmorning AM-Session for HCP – HealthCare Provider\n\n\n  \n\n************************************************************************************************************************************ \n  \n\nREGISTRATION for SESSION (2) TWO – AFTERNOON\n \n\n2) PM-SESSION (for PALS & CALS – People with ALS & CareGivers for People with ALS)\n \n\nDate: 17th-April-2021 (Saturday)\n \n\nMalaysia-Time 2:00pm to 4:30pm\n \n\n*CLICK PICTURE TO REGISTER*\n  \n\n\n\nafternoon PM-Session for PALS & CALS\n\n\n  \n\n************************************************************************************************************************************ \n  \n\nORGANIZED BY:\n\n\n\nMND Malaysia\n\n\n\n\n\nTTSH Home Ventilation Respiratory Support Service – HVRSS\n\n\n\n\n\nYayasan ALS Indonesia\n\n\n  \n\n************************************************************************************************************************************ \n\nTO KNOW WHAT MOTOR NEURONE DISEASE (MND) IS….. CLICK HERE\nwe are MND Malaysia
URL:https://mndmalaysia.org/en_gb/event/live-webinar-3rd-series-mnd-beyond-borders-the-educational-series/
LOCATION:Zoom
CATEGORIES:Awareness,Charity,Educational,Forum,Fundraising,Workshop
ATTACH;FMTTYPE=image/png:https://mndmalaysia.org/wp-content/uploads/2021/03/Thumb-17Apr2021-1-MND-Beyond-Borders-2021-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kuala_Lumpur:20210320T100000
DTEND;TZID=Asia/Kuala_Lumpur:20210320T163000
DTSTAMP:20260416T102328
CREATED:20210316T143539Z
LAST-MODIFIED:20221229T100255Z
UID:2418-1616234400-1616257800@mndmalaysia.org
SUMMARY:LIVE WEBINAR - 2nd Series "MND BEYOND BORDERS" - the educational series
DESCRIPTION:REGISTER NOW! to join our 2nd-Session “LIVE WEBINAR”\nof “MND BEYOND BORDERS” – the educational series. LINKS INSIDE\nLIVE WEBINAR – series 2 “MND BEYOND BORDERS” – the educational series\n\n\n\n“EMPOWERING LIVES THROUGH COMPASSIONATE CARING” – MND Malaysia\n\n  \n\n\n\nLIVE WEBINAR – series 2 (20th-MARCH’2021)\n\n\n  \n\n** MND BEYOND BORDERS – the educational series **\n  \n\nJOIN-OUR-WEBINAR (Series 2) on “ALL YOU WANT TO KNOW ABOUT MOTOR NEURON DISESE (MND)” with speaker Dr. Chan Yeow (Singapore) and Prof. Dr. Lydia Abdul Latif (Malaysia)\, this webinar session will be in ENGLISH and will be in Malaysia Time as timing reference. \n  \n\nThis WEBINAR is FREE to register and is set date on the 20th-MARCH’2021 (Saturday). This FREE-WEBINAR series 2 is available in 2 sessions in different times on the same day; the AM-Session for HealthCare Professionals (HCP) from 10am to 12.30pm \, the PM-Session for Patients and Carers (PALS & CALS) from 2pm to 4.30pm. Sessions details as below: \n  \n\nAM-Session\n  \n\n\n\nAM-Session for HealthCare Professionals at (Malaysia Time: 10am – 12.30pm)\n\n\n  \n\nAM-Session:- for HealthCare Professionals (HCP) Malaysia Time: 10am – 12.30pm \n  \n\n**FREE REGISTRATION** https://forms.gle/pWVrNqV7zX5zYMaX8 \n  \n\n  \n  \n\nPM-Session\n  \n\n\n\nPM-Session for Patients & Carers / PALS & CALS at (Malaysia Time: 10am – 12.30pm)\n\n\n  \n\nPM-Session:- for Patients & Carers (PALS & CALS) Malaysia Time: 10am – 12.30pm \n\n**FREE REGISTRATION** https://forms.gle/aXhZSAY3FGFQDna98 \n\nOrganized by: TTSH Home Ventilation & Repiratory Support Service – HVRSS    Yayasan ALS Indonesia  MND Malaysia \n\nEnquire us: mndmalaysia.edu@gmail.com \n\nReach-Us-Here:\n\nVisit our Website: www.mndMalaysia.org    Facebook: MND Malaysia    Instagram: mnd.malaysia \nYoutube: Motor Neurone Disease Malaysia – MND Malaysia \n  \n\nPopular HashTag we uses:  #ALSMNDWithoutBorders    #mndmalaysia    #ambassadorofmndmalaysia    #okiloveu
URL:https://mndmalaysia.org/en_gb/event/live-webinar-2nd-series-mnd-beyond-borders-the-educational-series/
CATEGORIES:Awareness,Charity,Educational,Forum,Training
ATTACH;FMTTYPE=image/png:https://mndmalaysia.org/wp-content/uploads/2021/03/Thumbnail-Session-2-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kuala_Lumpur:20210227T100000
DTEND;TZID=Asia/Kuala_Lumpur:20210227T163000
DTSTAMP:20260416T102328
CREATED:20210307T160915Z
LAST-MODIFIED:20221229T100530Z
UID:2403-1614420000-1614443400@mndmalaysia.org
SUMMARY:LIVE WEBINAR – series 1 “MND BEYOND BORDERS” – the educational series
DESCRIPTION: LIVE WEBINAR in 2 sessions (AM Session for HealthCare Professionals | PM session for Patients & Carers \n\n“TO KNOW ABOUT MOTOR NEURON DISEASE (MND)” \n  \nJoin us LIVE webinar! On 27th-February (Saturday)\, in our “MND Beyond Borders” free-webinar session to know about Motor Neuron Disease (MND). \n  \nSPEAKERS from Singapore\, Indonesia & MalaysiaWEBINAR runs in 2 sessions (AM session & PM session). \n  \nLanguage: English \n  \nWEBINAR IS FREE to all participants \n  \n**Sessions open to participants beyond borders** \n LIVE WEBINAR in 2 session (AM Session for HealthCare Professionals | PM session for Patients & Carers \n  \n\nAM Session for HealthCare Professionals\n  \n>>AM-SESSION<< 10am – 12:30pm (Malaysia Time) for HealthCare Professionals Free Registration forms.gle/WwUSmWJR5JYJoY5W8 \n  \n*Link in IG Bio* instagraming @mnd.malaysia \n  \n\nPM Session for Patients & Carers (PALS & CALS)\n  \n>>PM-SESSION<< 2pm – 4:30pm (Malaysia Time) for PALS & CALS. \nFree Registration forms.gle/B4jggUwBPUmT9ziUA \n  \n*Link in IG Bio* \ninstagraming @mnd.malaysia \n  \nEnquire us: mndmalaysia.edu@gmail.com \n  \n  \n  \nwww.mndMalaysia.org \n  \n#ALSMNDWithoutBorders \n  \n#mndMalaysia \n  \n#AmbassadorOFmndMalaysia \n  \n  \n  \nReach-Us-Here:\n  \nWebsite: www.mndMalaysia.org \n  \nFacebook: MND Malaysia  \n  \nInstagram: mnd.malaysia \n  \nYoutube: Motor Neurone Disease Malaysia – MND Malaysia  \n 
URL:https://mndmalaysia.org/en_gb/event/live-webinar-series-1-mnd-beyond-borders-the-educational-series/
CATEGORIES:Awareness,Charity,Educational,Training
ATTACH;FMTTYPE=image/jpeg:https://mndmalaysia.org/wp-content/uploads/2021/02/Webinar-series-1.jpg
ORGANIZER;CN="MND Malaysia":MAILTO:mndmalaysia@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20191130
DTEND;VALUE=DATE:20191201
DTSTAMP:20260416T102328
CREATED:20191130T094614Z
LAST-MODIFIED:20221229T112902Z
UID:2430-1575072000-1575158399@mndmalaysia.org
SUMMARY:ALS/MND Awareness Campaign by Xiamen University Malaysia
DESCRIPTION:rbt\nrbt
URL:https://mndmalaysia.org/en_gb/event/als-mnd-awareness-campaign-by-xiamen-university-malaysia/
LOCATION:Xiamen University Malaysia\, Jalan Sunsuria\, Bandar Sunsuria\, Sepang\, Selangor\, 43900\, Malaysia
CATEGORIES:Awareness
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kuala_Lumpur:20190303T070000
DTEND;TZID=Asia/Kuala_Lumpur:20190303T080000
DTSTAMP:20260416T102328
CREATED:20190302T230017Z
LAST-MODIFIED:20221229T123221Z
UID:2280-1551596400-1551600000@mndmalaysia.org
SUMMARY:Run for Rare
DESCRIPTION:Show your Rare. Show you Care.\nThe World Rare Disease Day takes place on the last day of February each year. The main objective of the Rare Disease Day is to raise awareness amongst the general public while encouraging researchers and decision makers to address the needs of those living with rare diseases as due to limited awareness\, many cases have gone undiagnosed.\n\nMalaysia Lysosomal Diseases Association (MLDA) believe that building awareness of rare diseases is very important. In line with this\, we are partnering with Sunway Group to organise Malaysia’s first “Run for Rare” event. The run event will be held on 3rd March\, at Sunway Medical Center\, in conjunction with the World Rare Disease Day. We are targeting to have 3\,000 runners at this charity run which will be flagged off by Health Minister\, YBhg. Dr. Dzulkefly Ahmad.\n\nWith the theme of “Bridging Health & Social Care”\, the association is focused on bridging the gaps in the coordination between medical\, social\, corporate and support services in order to tackle the challenges that people living with a rare disease and their families face every day. This is an opportunity to be part of a global call for policy makers\, healthcare professionals\, and care services to be better coordinated in all aspects of care for people living with a rare disease.\n\nRunners can experience Rare Disease patients’ endure every day through the Run for Rare. There will be mini challenges set within the route of the run as a symbolising the difficulty in walking for patients with limited mobility due to muscular dystrophy.\n\nThe daily life of patients and families with rare diseases can be challenging\, and at some point\, frustration and stress can make them feel like giving up. Every week\, fortnightly or monthly\, patients of rare diseases will need to take medications\, undergo treatments\, attend appointments that encompasses physical therapy using special equipments\, ENT\, respiratory\, ultrasound scan\, x-rays and more. This is on top of participating in various social and community support services and respite care. Parents of children with rare diseases can hardly rest as their child tends to be hyperactive\, even throughout the night. Moreover\, these children are often warded due to complications and most frequently\, pneumonia.\n\nThe complexity of rare diseases\, the strong relation to disability and the current unmet social needs must not be underestimated. This disease requires urgent attention from all stakeholders involved in care provision\, i.e. from healthcare\, social and community services. Approaches such as standards of care\, networks of expertise and one-stop-services should be developed to aim at bridging the gap between health\, social and community services and support providers. Therefore\, we hope to be able to raise more awareness through this event and to enable patients and their families to get as much help as they need\, financially and emotionally.\n\nWe hope every Malaysian will come together to support this event and play a part in building a better tomorrow for each other. Kindly log in to www.justonlineregistration.com to register for the race.\n\nShare this event with your family and friends! #ShowYourRareShowYouCare!
URL:https://mndmalaysia.org/en_gb/event/run-for-rare/
LOCATION:Sunway Medical Centre\, 5\, Jalan Lagoon Selatan\, Bandar Sunway\, Petaling Jaya\, Selangor\, 47500\, Malaysia
CATEGORIES:Awareness
ATTACH;FMTTYPE=image/jpeg:https://mndmalaysia.org/wp-content/uploads/2021/01/E15-4.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kuala_Lumpur:20160813T190000
DTEND;TZID=Asia/Kuala_Lumpur:20160813T220000
DTSTAMP:20260416T102328
CREATED:20160812T160059Z
LAST-MODIFIED:20221229T142547Z
UID:2149-1471114800-1471125600@mndmalaysia.org
SUMMARY:It’s Life; C’est La Vie
DESCRIPTION:This event’s objectives are to create awareness of the impact of Motor Neurone Disease (MND) to the patients and help the patients by donating money and providing services to them.
URL:https://mndmalaysia.org/en_gb/event/its-life-cest-la-vie/
LOCATION:UTAR Sports Complex
CATEGORIES:Awareness,Fundraising
ATTACH;FMTTYPE=image/jpeg:https://mndmalaysia.org/wp-content/uploads/2016/08/E2-2.jpg
END:VEVENT
END:VCALENDAR