BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//MND Malaysia - ECPv6.3.7//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://mndmalaysia.org/en_gb
X-WR-CALDESC:Events for MND Malaysia
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:Asia/Kuala_Lumpur
BEGIN:STANDARD
TZOFFSETFROM:+0800
TZOFFSETTO:+0800
TZNAME:+08
DTSTART:20150101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200227
DTEND;VALUE=DATE:20200228
DTSTAMP:20260416T054530
CREATED:20200226T160002Z
LAST-MODIFIED:20221229T104613Z
UID:2489-1582761600-1582847999@mndmalaysia.org
SUMMARY:Supporting World Rare Disease Day
DESCRIPTION:
URL:https://mndmalaysia.org/en_gb/event/supporting-world-rare-disease-day/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kuala_Lumpur:20200215T133000
DTEND;TZID=Asia/Kuala_Lumpur:20200215T170000
DTSTAMP:20260416T054530
CREATED:20200215T053045Z
LAST-MODIFIED:20221229T104922Z
UID:2471-1581773400-1581786000@mndmalaysia.org
SUMMARY:Charity Golf Day Supporting MND Malaysia – #BrendanChathamForever
DESCRIPTION:100% of profits will be donated to MND Malaysia. \n\nIncludes buffet dinner\, raffle prizes\, team competition\, nearest to the pin\, longest drive\, and of course the party hole!\nThere will be buses running to and from our nominated collection points in KL.\nClub hire available on the day.\n\nPartners: \n\nBLUESTAR AMG\nHavana\nWCT\nTitleist\n\nrbt
URL:https://mndmalaysia.org/en_gb/event/charity-golf-day-supporting-mnd-malaysia-brendanchathamforever/
LOCATION:Amverton Cove Golf Club\, Jalan Pulau Carey\, Pulau Carey\, Selangor\, 42960\, Malaysia
CATEGORIES:Charity,Fundraising
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200215
DTEND;VALUE=DATE:20200216
DTSTAMP:20260416T054530
CREATED:20200214T160036Z
LAST-MODIFIED:20221229T110217Z
UID:2452-1581724800-1581811199@mndmalaysia.org
SUMMARY:MND Let’s Get Together Luncheon
DESCRIPTION:An afternoon lunch with our MND Patients and Carers.
URL:https://mndmalaysia.org/en_gb/event/mnd-lets-get-together-luncheon/
CATEGORIES:Meetup
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kuala_Lumpur:20200119T110000
DTEND;TZID=Asia/Kuala_Lumpur:20200119T133000
DTSTAMP:20260416T054530
CREATED:20200116T030026Z
LAST-MODIFIED:20221229T111248Z
UID:2443-1579431600-1579440600@mndmalaysia.org
SUMMARY:Special Screening of “The Garden of Evening Mist”
DESCRIPTION:Special Screening: A Daie Culture Charity Fundraising Event for MND Malaysia (Persatuan Penyakit Motor Neuron Malaysia) \nDonors will receive one (1) GSC movie ticket for every RM100 donated as charity to MND Malaysia.
URL:https://mndmalaysia.org/en_gb/event/special-screening-of-the-garden-of-evening-mist/
LOCATION:GSC – 1 Utama\, E403\, 1 Utama Shopping Centre\, 1\, Lebuh Bandar Utama\, Bandar Utama\, Petaling Jaya\, Selangor\, 47800\, Malaysia
CATEGORIES:Fundraising
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20191130
DTEND;VALUE=DATE:20191201
DTSTAMP:20260416T054530
CREATED:20191130T094614Z
LAST-MODIFIED:20221229T112902Z
UID:2430-1575072000-1575158399@mndmalaysia.org
SUMMARY:ALS/MND Awareness Campaign by Xiamen University Malaysia
DESCRIPTION:rbt\nrbt
URL:https://mndmalaysia.org/en_gb/event/als-mnd-awareness-campaign-by-xiamen-university-malaysia/
LOCATION:Xiamen University Malaysia\, Jalan Sunsuria\, Bandar Sunsuria\, Sepang\, Selangor\, 43900\, Malaysia
CATEGORIES:Awareness
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20191019
DTEND;VALUE=DATE:20191020
DTSTAMP:20260416T054530
CREATED:20191019T094116Z
LAST-MODIFIED:20221229T115526Z
UID:2426-1571443200-1571529599@mndmalaysia.org
SUMMARY:Fundraising by Mr. Brendon Chatham of the Malaysian Warriors Australian Rules Football Club (MWAFC)
DESCRIPTION:Motor Neurone Disease (ALS/MND) raising awareness & fundraising by Mr. Brendon Chatham of the Malaysian Warriors Australian Rules Football Club (MWAFC).
URL:https://mndmalaysia.org/en_gb/event/fundraising-by-mr-brendon-chatham-of-the-malaysian-warriors-australian-rules-football-club-mwafc/
CATEGORIES:Fundraising
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190614
DTEND;VALUE=DATE:20190616
DTSTAMP:20260416T054530
CREATED:20190510T124749Z
LAST-MODIFIED:20221229T122041Z
UID:2301-1560470400-1560643199@mndmalaysia.org
SUMMARY:Home Ventilation Course
DESCRIPTION:
URL:https://mndmalaysia.org/en_gb/event/home-ventilation-course/
LOCATION:The CUBE\, Faculty of Medicine\, University of Malaya\, Kuala Lumpur\, Federal Territory of Kuala Lumpur\, 50603
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/jpeg:https://mndmalaysia.org/wp-content/uploads/2021/01/E17-3.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kuala_Lumpur:20190328T140000
DTEND;TZID=Asia/Kuala_Lumpur:20190328T170000
DTSTAMP:20260416T054530
CREATED:20190328T060044Z
LAST-MODIFIED:20221229T122917Z
UID:2291-1553781600-1553792400@mndmalaysia.org
SUMMARY:Home NIV Workshop
DESCRIPTION:Agenda\n\n14:00 – Introduction of needs of Home Ventilation Team by Dr. Shairil\n14:15 – NIV: Principles and Indications by Dr. Elliott\n14:30 – Challenges in using NIV (Group Work & Participant Feedback) by Dr. Loh\n15:00 – NIV Titration\, Hospital & Home Settings by Dr. Elliott\n15:30 – OSA Management during NIV by Dr. Elliott\n16:00 – Q&A Session\n16:15 – Tea Break\n\nHands-on Work Station: \n\n16:30 – NIV Desensitization & Adherence Management by Dr. Loh & Dr. David\n16:45 – NIV with Volume Target (Auto-Pressure Support with Volume Assured) by Dr. Fitri & Dr. Shairil\n17:00 – OSA Management during NIV (Sleep Events Reporting & Auto-EPAP) by Dr. David\n\nKey Speaker: \nDr. Mark Elliot\, Consultant Physician in Respiratory Medicine at St. James’ University Hospital\, Leeds and Senior Clinical Lecturer at the University of Leeds. He is the current president of British Thoracic Society and member of NIV guideline writing groups for the British Thoracic Society\, the European Respiratory Society\, and American Thoracic Society. He is responsible for developing the home sleep and assisted ventilation services\, for acute in hospital NIV and weaning of patients with prolonged ventilator dependence at St James’ University Hospital. His research interests are in acute and chronic NIV and OSA. \nOther Speakers: \n\nDr. Loh Ee Chin\, Consultant Palliative Medicine\, UM\nDr. Mohd Fitry Bin Zainal Abidin\, Clinical Specialist and Lecturer\, Department of Anaesthesia\, UM\nDr. Shairil Rahayu Binti Ruslan\, Clinical Specialist and Lecturer\, Department of Anaesthesia\, UM\nDr. David Capelle\, Clinical Specialist\, Palliative Care Unit\, UM\n\nAll speakers are volunteers. \nThis event is in collaboration with Philips Respironics.
URL:https://mndmalaysia.org/en_gb/event/home-niv-workshop/
LOCATION:Dewan T.J. Danaraj\, Faculty of Medicine\, University of Malaya\, Kuala Lumpur\, Federal Territory of Kuala Lumpur\, 50603\, Malaysia
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/jpeg:https://mndmalaysia.org/wp-content/uploads/2021/01/E16-2.jpg
ORGANIZER;CN="MND Malaysia":MAILTO:mndmalaysia@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kuala_Lumpur:20190303T070000
DTEND;TZID=Asia/Kuala_Lumpur:20190303T080000
DTSTAMP:20260416T054530
CREATED:20190302T230017Z
LAST-MODIFIED:20221229T123221Z
UID:2280-1551596400-1551600000@mndmalaysia.org
SUMMARY:Run for Rare
DESCRIPTION:Show your Rare. Show you Care.\nThe World Rare Disease Day takes place on the last day of February each year. The main objective of the Rare Disease Day is to raise awareness amongst the general public while encouraging researchers and decision makers to address the needs of those living with rare diseases as due to limited awareness\, many cases have gone undiagnosed.\n\nMalaysia Lysosomal Diseases Association (MLDA) believe that building awareness of rare diseases is very important. In line with this\, we are partnering with Sunway Group to organise Malaysia’s first “Run for Rare” event. The run event will be held on 3rd March\, at Sunway Medical Center\, in conjunction with the World Rare Disease Day. We are targeting to have 3\,000 runners at this charity run which will be flagged off by Health Minister\, YBhg. Dr. Dzulkefly Ahmad.\n\nWith the theme of “Bridging Health & Social Care”\, the association is focused on bridging the gaps in the coordination between medical\, social\, corporate and support services in order to tackle the challenges that people living with a rare disease and their families face every day. This is an opportunity to be part of a global call for policy makers\, healthcare professionals\, and care services to be better coordinated in all aspects of care for people living with a rare disease.\n\nRunners can experience Rare Disease patients’ endure every day through the Run for Rare. There will be mini challenges set within the route of the run as a symbolising the difficulty in walking for patients with limited mobility due to muscular dystrophy.\n\nThe daily life of patients and families with rare diseases can be challenging\, and at some point\, frustration and stress can make them feel like giving up. Every week\, fortnightly or monthly\, patients of rare diseases will need to take medications\, undergo treatments\, attend appointments that encompasses physical therapy using special equipments\, ENT\, respiratory\, ultrasound scan\, x-rays and more. This is on top of participating in various social and community support services and respite care. Parents of children with rare diseases can hardly rest as their child tends to be hyperactive\, even throughout the night. Moreover\, these children are often warded due to complications and most frequently\, pneumonia.\n\nThe complexity of rare diseases\, the strong relation to disability and the current unmet social needs must not be underestimated. This disease requires urgent attention from all stakeholders involved in care provision\, i.e. from healthcare\, social and community services. Approaches such as standards of care\, networks of expertise and one-stop-services should be developed to aim at bridging the gap between health\, social and community services and support providers. Therefore\, we hope to be able to raise more awareness through this event and to enable patients and their families to get as much help as they need\, financially and emotionally.\n\nWe hope every Malaysian will come together to support this event and play a part in building a better tomorrow for each other. Kindly log in to www.justonlineregistration.com to register for the race.\n\nShare this event with your family and friends! #ShowYourRareShowYouCare!
URL:https://mndmalaysia.org/en_gb/event/run-for-rare/
LOCATION:Sunway Medical Centre\, 5\, Jalan Lagoon Selatan\, Bandar Sunway\, Petaling Jaya\, Selangor\, 47500\, Malaysia
CATEGORIES:Awareness
ATTACH;FMTTYPE=image/jpeg:https://mndmalaysia.org/wp-content/uploads/2021/01/E15-4.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kuala_Lumpur:20180826T143000
DTEND;TZID=Asia/Kuala_Lumpur:20180826T163000
DTSTAMP:20260416T054530
CREATED:20180826T063012Z
LAST-MODIFIED:20221229T125031Z
UID:2273-1535293800-1535301000@mndmalaysia.org
SUMMARY:Forum: The Life of a Person with MND
DESCRIPTION:The Life of a Person with Motor Neuron Disease\nEveryone has the right to survive and choose. \nSpeakers: \n\nProf. Nortina Shahrizaila (Consultant in Neurology\, UMMC)\nMr. Benny Ng Ah Thiam (Chairman\, MND Malaysia)\nDr. Loh Chee Lin (Consultant in Palliative Medicine\, UMMC)
URL:https://mndmalaysia.org/en_gb/event/forum-the-life-of-a-person-with-mnd/
LOCATION:Dewan T.J. Danaraj\, Faculty of Medicine\, University of Malaya\, Kuala Lumpur\, Federal Territory of Kuala Lumpur\, 50603\, Malaysia
CATEGORIES:Forum
ATTACH;FMTTYPE=image/jpeg:https://mndmalaysia.org/wp-content/uploads/2021/01/E14-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20180127
DTEND;VALUE=DATE:20180128
DTSTAMP:20260416T054530
CREATED:20210123T113616Z
LAST-MODIFIED:20221229T131015Z
UID:2244-1517011200-1517097599@mndmalaysia.org
SUMMARY:MND Forum by Sarawak General Hospital
DESCRIPTION:
URL:https://mndmalaysia.org/en_gb/event/mnd-forum-by-sarawak-general-hospital/
LOCATION:Sarawak General Hospital\, Jalan Hospital\, Kuching\, Sarawak\, 93586\, Malaysia
CATEGORIES:Forum
ATTACH;FMTTYPE=image/jpeg:https://mndmalaysia.org/wp-content/uploads/2021/01/E10-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kuala_Lumpur:20171014T090000
DTEND;TZID=Asia/Kuala_Lumpur:20171014T160000
DTSTAMP:20260416T054530
CREATED:20171014T010046Z
LAST-MODIFIED:20221229T131403Z
UID:2218-1507971600-1507996800@mndmalaysia.org
SUMMARY:Motor Neuron Disease (MND) Forum 2017
DESCRIPTION:Neurology Collaboration with Universiti Malaysia Sarawak (UNIMAS)\nFREE Registration. Come and join us!
URL:https://mndmalaysia.org/en_gb/event/motor-neuron-disease-mnd-forum-2017/
LOCATION:University of Malaysia Sarawak (UNIMAS)\, Jalan Datuk Mohammad Musa\, Kota Samarahan\, Sarawak\, 94300\, Malaysia
CATEGORIES:Forum
ATTACH;FMTTYPE=image/jpeg:https://mndmalaysia.org/wp-content/uploads/2021/01/E8-3.jpg
ORGANIZER;CN="MND Malaysia":MAILTO:mndmalaysia@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20170923
DTEND;VALUE=DATE:20170924
DTSTAMP:20260416T054530
CREATED:20210123T104324Z
LAST-MODIFIED:20221229T133100Z
UID:2200-1506124800-1506211199@mndmalaysia.org
SUMMARY:2017 Asia-Pacific ALS/MND Conference
DESCRIPTION:The 2nd China ALS/MND Patient Conference
URL:https://mndmalaysia.org/en_gb/event/2017-asia-pacific-als-mnd-conference/
CATEGORIES:Conference
ATTACH;FMTTYPE=image/jpeg:https://mndmalaysia.org/wp-content/uploads/2021/01/E7-10.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kuala_Lumpur:20170212T064500
DTEND;TZID=Asia/Kuala_Lumpur:20170212T083000
DTSTAMP:20260416T054530
CREATED:20170201T224512Z
LAST-MODIFIED:20221229T133910Z
UID:2183-1486881900-1486888200@mndmalaysia.org
SUMMARY:Motor Neurone Disease 5km Charity Run
DESCRIPTION:“We make a living by what we get\, but we make a life by what we give.”— Winston Churchill\nDon’t turn your back to those in need!\n\nOpen to public (RM50) and UM students (RM35).\n\nIncludes: T-shirt\, medal\, running bib\, e-certificate\, lucky draw\, light refreshment\, and fun activities such as the Ice Bucket Challenge.
URL:https://mndmalaysia.org/en_gb/event/motor-neurone-disease-5km-charity-run/
LOCATION:Dewan Tunku Canselor\, 825\, Lingkungan Budi\, Kuala Lumpur\, Wilayah Persekutuan\, 50603
CATEGORIES:Charity
ATTACH;FMTTYPE=image/jpeg:https://mndmalaysia.org/wp-content/uploads/2021/01/E6-4.jpg
ORGANIZER;CN="MND Malaysia":MAILTO:mndmalaysia@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kuala_Lumpur:20161015T093000
DTEND;TZID=Asia/Kuala_Lumpur:20161015T163000
DTSTAMP:20260416T054530
CREATED:20161015T013033Z
LAST-MODIFIED:20221229T140651Z
UID:2172-1476523800-1476549000@mndmalaysia.org
SUMMARY:MND Forum @ Sultanah Bahiyah Hospital
DESCRIPTION:
URL:https://mndmalaysia.org/en_gb/event/mnd-forum-in-kedah/
LOCATION:Sultanah Bahiyah Hospital\, Km 6\, Jln Langgar\, Bandar Alor Setar\, Alor Setar\, Kedah\, 05460\, Malaysia
CATEGORIES:Forum
ATTACH;FMTTYPE=image/jpeg:https://mndmalaysia.org/wp-content/uploads/2021/01/E5-1-scaled.jpg
ORGANIZER;CN="MND Malaysia":MAILTO:mndmalaysia@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kuala_Lumpur:20160813T190000
DTEND;TZID=Asia/Kuala_Lumpur:20160813T220000
DTSTAMP:20260416T054530
CREATED:20160812T160059Z
LAST-MODIFIED:20221229T142547Z
UID:2149-1471114800-1471125600@mndmalaysia.org
SUMMARY:It’s Life; C’est La Vie
DESCRIPTION:This event’s objectives are to create awareness of the impact of Motor Neurone Disease (MND) to the patients and help the patients by donating money and providing services to them.
URL:https://mndmalaysia.org/en_gb/event/its-life-cest-la-vie/
LOCATION:UTAR Sports Complex
CATEGORIES:Awareness,Fundraising
ATTACH;FMTTYPE=image/jpeg:https://mndmalaysia.org/wp-content/uploads/2016/08/E2-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kuala_Lumpur:20150523T093000
DTEND;TZID=Asia/Kuala_Lumpur:20150523T123000
DTSTAMP:20260416T054530
CREATED:20150522T160034Z
LAST-MODIFIED:20221229T143210Z
UID:2138-1432373400-1432384200@mndmalaysia.org
SUMMARY:This is Motor Neuron Disease: MND/ALS Forum
DESCRIPTION:Make a difference in the lives of MND/ALS patients\nIn 2014\, many participated in the “Ice Bucket Challenge” but not all were aware that the challenge was in aid of Motor Neuron Disease / Amyotrophic Lateral Sclerosis (MND/ALS). \nCome and find out more about MND/ALS. Your understanding will make a difference to persons living with MND/ALS. \nLIMITED SEATS AVAILABLE. ADMISSION IS FREE. \nFirst-come\, first-serve basis. A light meal and refreshments will be provided. \nVenue: Dewan Sekapur Sirih\, Level 1\, Trauma & Emergency Building \nTopics \n\nWHAT is MND? What are the signs and symptoms?\nHOW to treat and manage MND.\nHOW to manage disability with MND.\nHOW to cope with MND – palliative care.\nMND Caregiver. How to deal with patients and caregiving.\nThe MND Malaysia Society. Where to seek help and consultation.
URL:https://mndmalaysia.org/en_gb/event/this-is-motor-neuron-disease-mnd-als-forum/
LOCATION:UMMC\, Jln Profesor Diraja Ungku Aziz\,\, Kuala Lumpur\, Wilayah Persekutuan\, 59100\, Malaysia
CATEGORIES:Forum
ATTACH;FMTTYPE=image/jpeg:https://mndmalaysia.org/wp-content/uploads/2021/01/E1-4.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20150411
DTEND;VALUE=DATE:20150413
DTSTAMP:20260416T054530
CREATED:20210118T160231Z
LAST-MODIFIED:20221229T144513Z
UID:1989-1428710400-1428883199@mndmalaysia.org
SUMMARY:2015 Asia-Pacific ALS/MND Conference
DESCRIPTION: 
URL:https://mndmalaysia.org/en_gb/event/2015-asia-pacific-als-mnd-conference/
LOCATION:The Grand Hotel\, No. 1號\, Section 4\, Zhongshan North Road\, Zhongshan District\, Taipei City\, 10461\, Taiwan
CATEGORIES:Conference
ATTACH;FMTTYPE=image/png:https://mndmalaysia.org/wp-content/uploads/2021/01/E0-5.png
END:VEVENT
END:VCALENDAR