{"id":1708,"date":"2020-10-25T14:57:08","date_gmt":"2020-10-25T06:57:08","guid":{"rendered":"https:\/\/mndmalaysia.org\/?page_id=1708"},"modified":"2024-10-08T15:39:39","modified_gmt":"2024-10-08T07:39:39","slug":"frequently-asked-questions","status":"publish","type":"page","link":"https:\/\/mndmalaysia.org\/zh\/frequently-asked-questions\/","title":{"rendered":"Frequently Asked Questions (FAQs)"},"content":{"rendered":"<div class=\"vc_row wpb_row vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\">\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<p><span style=\"font-weight: 400;\">From the moment they are diagnosed and throughout their disease progression, people with Motor Neurone Disease (MND) will require <\/span><span style=\"font-weight: 400;\">palliative<\/span><span style=\"font-weight: 400;\"> care equipment and help from family to manage their symptoms at home\u2014so that they can achieve the best possible quality of life.\u00a0<\/span><\/p>\n<h2 class=\"wp-block-heading\"><strong>\u9a6c\u6765\u897f\u4e9a\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u534f\u4f1a\u5982\u4f55\u5e2e\u52a9\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u60a3\u8005\uff1f<\/strong><\/h2>\n<p>\u9a6c\u6765\u897f\u4e9a\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u534f\u4f1a\u4f5c\u4e3a\u4e00\u4e2a\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u7684\u5e73\u53f0\uff0c\u5b83\u4e0d\u4ec5\u662f\u4e00\u4e2a\u80fd\u63d0\u9ad8\u793e\u4f1a\u5bf9\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u60a3\u8005\u7fa4\u4f53\u7684\u8ba4\u8bc6\u7684\u5e73\u53f0\uff0c\u800c\u4e14\u8fd8\u53ef\u4ee5\u5c06\u6709\u5173\u4fe1\u606f\u544a\u77e5\u516c\u4f17\u3002\u8be5\u5e73\u53f0\u53ef\u901a\u8fc7\u4ee5\u4e0b\u65b9\u5f0f\u6765\u4e3a\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u60a3\u8005\u63d0\u4f9b\u5e2e\u52a9\uff1a<\/p>\n<ul>\n<li>Connecting people with MND to the relevant parties.\u00a0Contact us at <a href=\"https:\/\/wa.me\/60129013798\">+6012 9013798<\/a> \uff08WhatsApp\uff09\u6216 <a href=\"mailto:mndmalaysia@gmail.com\">mndmalaysia@gmail.com<\/a> \u4e0e\u6211\u4eec\u8054\u7cfb\u4ee5\u83b7\u53d6\u5e2e\u52a9\u3002<\/li>\n<li><span style=\"font-weight: 400;\">Leasing of <\/span><span style=\"font-weight: 400;\">palliative<\/span><span style=\"font-weight: 400;\"> care equipment for people with MND that have been discharged and registered with us. Equipment required depends on the availability and the disease progression of a person with MND.<\/span>\u00a0<a href=\"#equipment\" data-type=\"internal\" data-id=\"#howwehelp-equipment\">\u4e86\u89e3\u6709\u5173\u8bbe\u5907\u79df\u8d41\u7684\u66f4\u591a\u4fe1\u606f\u3002<\/a><\/li>\n<li><span style=\"font-weight: 400;\">\u5b89\u6392\u5bf9\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u60a3\u8005\u4f4f\u6240\u7684\u5bb6\u8bbf\u3002<\/span><\/li>\n<li><span style=\"font-weight: 400;\">\u5bf9\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u60a3\u8005\u7684\u5bb6\u4eba\u8fdb\u884c\u62a4\u7406\u6559\u80b2\uff0c\u4ee5\u4fbf\u5176\u5728\u5bb6\u91cc\u4e5f\u80fd\u5e2e\u52a9\u62a4\u7406\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u60a3\u8005\u3002<\/span><\/li>\n<li><span style=\"font-weight: 400;\">\u4e3a\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u60a3\u8005\uff08\u53ca\u5176\u5bb6\u4eba\uff09\u7ec4\u7ec7\u6d3b\u52a8\uff0c\u4ee5\u4f7f\u5176\u53c2\u52a0\u793e\u4ea4\u6d3b\u52a8\u5e76\u4e0e\u793e\u4f1a\u4fdd\u6301\u8054\u7cfb\u3002<\/span><\/li>\n<li><span style=\"font-weight: 400;\">Connecting MND-related medical professionals (Doctors, Nurses, and Therapists) in hospitals nationwide to effectively diagnose and provide the required <\/span><span style=\"font-weight: 400;\">palliative<\/span><span style=\"font-weight: 400;\"> care to manage the disease for people with MND.<\/span><\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<h2><strong>\u9a6c\u6765\u897f\u4e9a\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u534f\u4f1a\u53ef\u5426\u63d0\u4f9b\u7ecf\u6d4e\u63f4\u52a9\uff1f<\/strong><\/h2>\n<p>&nbsp;<\/p>\n<p>\u4e0d\u53ef\u4ee5\uff0c\u9a6c\u6765\u897f\u4e9a\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u534f\u4f1a\u4e0d\u63d0\u4f9b\u7ecf\u6d4e\u63f4\u52a9\u3002\u5982\u9700\u83b7\u5f97\u7ecf\u6d4e\u63f4\u52a9\uff0c\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u60a3\u8005\u53ca\u5176\u5bb6\u5c5e\u5e94\u5411\u4ee5\u4e0b\u7ec4\u7ec7\u54a8\u8be2\uff0c\u4ee5\u4e86\u89e3\u5728\u5404\u4e2a\u7ec4\u7ec7\u7684\u6761\u6b3e\u548c\u6761\u4ef6\u4e0b\u60a3\u8005\u53ca\u5176\u5bb6\u5c5e\u53ef\u4e3b\u5f20\u7684\u6743\u5229\u6216\u798f\u5229\uff1a<\/p>\n<p>&nbsp;<\/p>\n<ol>\n<li><strong>\u4fdd\u9669\u516c\u53f8\u3002<\/strong> \u60a8\u7684\u4fdd\u9669\u516c\u53f8\u4e00\u822c\u4f1a\u5c06\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u7eb3\u5165\u201c\u91cd\u5927\u75be\u75c5\u201d\u7c7b\u522b\u3002\u8bf7\u54a8\u8be2\u60a8\u7684\u4fdd\u9669\u516c\u53f8\u4ee5\u4e86\u89e3\u6709\u5173\u60a8\u7684\u4fdd\u9669\u8986\u76d6\u8303\u56f4\u7684\u66f4\u591a\u4fe1\u606f\u3002<\/li>\n<li><a href=\"\/zh\/&lt;a href=&quot;http:\/\/www.perkeso.gov.my&quot; target=&quot;_self&quot; rel=&quot;noreferrer noopener&quot;&gt;&lt;strong&gt;\u793e\u4f1a\u4fdd\u969c\u7ec4\u7ec7\uff08SOCSO\uff09\/ Pertubuhan Keselamatan Sosial\uff08PERKESO\uff09\u3002&lt;\/strong&gt;&lt;\/a&gt;&lt;strong&gt;. &lt;\/strong&gt; \u5982\u679c\u4f60\u5df2\u5c31\u4e1a\u5e76\u5df2\u5728\u793e\u4f1a\u4fdd\u969c\u7ec4\u7ec7\uff08SOCSO\/PERKESO\uff09\u6709\u6ce8\u518c\uff0c\u8bf7\u5411\u8be5\u7ec4\u7ec7\u54a8\u8be2\u66f4\u591a\u76f8\u5173\u4fe1\u606f\u3002\/\" target=\"_blank\" rel=\"noreferrer noopener\"><strong>Social Security Organisation (SOCSO) \/ Pertubuhan Keselamatan Sosial (PERKESO)<\/strong><\/a><strong>. <\/strong>If you are employed and registered with SOCSO\/PERKESO, please consult with them for more information.<\/li>\n<li class=\" translation-block\"><a href=\"http:\/\/www.kwsp.gov.my\" target=\"_self\" rel=\"noreferrer noopener\"><strong>\u96c7\u5458\u516c\u79ef\u91d1\uff08EPF\uff09\/ Kumpulan Wang Simpanan Pekerja\uff08KWSP\uff09\u3002<\/strong><\/a><strong>. <\/strong> \u5bf9\u4e8e\u533b\u7597\u95ee\u9898\u63d0\u6b3e\uff0c\u96c7\u5458\u516c\u79ef\u91d1\uff08EPF \/ KWSP\uff09\u6db5\u76d6\u201c\u795e\u7ecf\u7cfb\u7edf\u201d\u4e0b\u7684\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u3002\u4f60\u53ef\u4ee5\u4ece\u4f60\u7684\u516c\u79ef\u91d1\u7b2c\u4e8c\u6237\u53e3\u63d0\u6b3e\uff0c\u6765\u5e2e\u52a9\u652f\u4ed8\u5df2\u6279\u51c6\u7684\u75be\u75c5\u6cbb\u7597\u6216\u4f7f\u7528\u8bbe\u5907\u6240\u4ea7\u751f\u7684\u7684\u533b\u7597\u8d39\u7528\u3002\u6b32\u77e5\u8be6\u60c5\uff0c\u8bf7\u54a8\u8be2\u96c7\u5458\u516c\u79ef\u91d1\u3002<\/li>\n<li class=\" translation-block\"><a href=\"http:\/\/www.jkm.gov.my\" target=\"_self\" rel=\"noreferrer noopener\"><strong>\u793e\u4f1a\u798f\u5229\u90e8\/ Jabatan Kebajikan Masyarakat\uff08JKM\uff09\u3002 <\/strong><\/a><strong>. <\/strong>\u793e\u4f1a\u798f\u5229\u90e8\uff08JKM\uff09\u4ece\u5c5e\u4e8e\u9a6c\u6765\u897f\u4e9a\u5987\u5973\u3001\u5bb6\u5ead\u53ca\u793e\u4f1a\u53d1\u5c55\u90e8\uff08Kementerian Pembangunan Wanita\uff0cKeluarga\uff0cdan Masyarakat\uff09\u4e4b\u4e0b\u6765\u4e3a\u4eba\u4eec\u63d0\u4f9b\u798f\u5229\u670d\u52a1\u3002\u8bf7\u54a8\u8be2\u8be5\u7ec4\u7ec7\u4ee5\u83b7\u53d6\u66f4\u591a\u4fe1\u606f\u3002<\/li>\n<\/ol>\n<p>&nbsp;<\/p>\n<h2 id=\"equipment\"><strong>What <\/strong><strong>equipment does MND Malaysia provide<\/strong><strong>?<\/strong><\/h2>\n<p><span style=\"font-weight: 400;\">\u8fd9\u53d6\u51b3\u4e8e\u6bcf\u4e2a\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u60a3\u8005\u7684\u75c5\u60c5\u53d1\u5c55\u60c5\u51b5\uff0c\u8bbe\u5907\u5c06\u5e2e\u52a9\u4ed6\u4eec\u5728\u60a3\u6709\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u7684\u540c\u65f6\u4e5f\u4ecd\u7136\u53ef\u4ee5\u62e5\u6709\u6700\u4f73\u7684\u751f\u6d3b\u8d28\u91cf\u3002\u8bbe\u5907\u7684\u79df\u8d41\u53d6\u51b3\u4e8e\u5176\u53ef\u83b7\u53d6\u6027\uff0c\u5f53\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u60a3\u8005\u4e0d\u518d\u9700\u8981\u8be5\u8bbe\u5907\u65f6\uff0c\u4ed6\u5fc5\u987b\u5c06\u5176\u9000\u8fd8\u7ed9\u6211\u4eec\uff0c\u4ee5\u4fbf\u7b49\u5019\u540d\u5355\u4e2d\u7684\u4e0b\u4e00\u4e2a\u4eba\u53ef\u4ee5\u4f7f\u7528\u8be5\u8bbe\u5907\u3002<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u9a6c\u6765\u897f\u4e9a\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u534f\u4f1a\u4ec5\u5411\u5df2\u51fa\u9662\u5e76\u5df2\u5728\u6211\u4eec\u534f\u4f1a\u6709\u6ce8\u518c\u7684\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u60a3\u8005\u514d\u8d39\u51fa\u79df\u76f8\u5173\u533b\u7597\u8bbe\u5907\u3002\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u4ec5\u5728\u6ee1\u8db3\u4ee5\u4e0b\u6240\u6709\u6761\u4ef6\u7684\u60c5\u51b5\u4e0b\uff0c\u672c\u534f\u4f1a\u7684\u8bbe\u5907\u79df\u8d41\u624d\u9002\u7528\u4e8e\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u60a3\u8005\uff1a<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">\u4ed6\u4eec\u5c5e\u4e8e\u9a6c\u6765\u897f\u4e9a\u201c\u6700\u4f4e\u768440\uff05\uff08\u5373B40\uff09\u201d \u7684\u5bb6\u5ead\u6536\u5165\u7fa4\u4f53\u3002<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">\u5f53\u4ed6\u4eec\u5411\u793e\u4f1a\u798f\u5229\u90e8\uff08Jabatan Kebajikan Masyarakat\uff0c\u7b80\u79f0JKM\uff09\u6240\u7533\u8bf7\u7684\u8bbe\u5907\u4e0d\u53ef\u83b7\u53d6\u6216\u6b63\u5728\u7b49\u5f85\u6279\u51c6\u65f6\u3002<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400;\">\u7531\u672c\u534f\u4f1a\u63d0\u4f9b\u7684\u53ef\u4f9b\u79df\u8d41\u7684\u8bbe\u5907\u7c7b\u578b\uff1a<\/span><\/p>\n<ol>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">.\u533b\u7528\u547c\u5438\u673a\uff08Trilogy 100\u547c\u5438\u673a\u3001DreamStation BiPAP AVAPS\u547c\u5438\u673a\u3001Cough Assist\u54b3\u75f0\u673a\uff09<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Communication Eye Tracker (Tobii)<\/span><\/li>\n<\/ol>\n<p>&nbsp;<\/p>\n<h2 id=\"resources\"><strong>\u514d\u8d39\u8d44\u6e90<\/strong> <\/h2>\n<ul>\n<li><strong>\u901a\u8baf\u5361\u3002 <\/strong>\u5e26\u6709\u5b57\u6bcd\u6570\u5b57\u548c\u56fe\u6807\u7684\u53ef\u5217\u5370\u5361\u7247\uff0c\u7528\u4e8e\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u60a3\u8005\u548c\u5176\u4ed6\u4eba\u4e4b\u95f4\u7684\u6c9f\u901a\u3002 <a href=\"https:\/\/mndmalaysia.org\/wp-content\/uploads\/2020\/11\/MND-Malaysia-Communication-Cards.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">\u67e5\u770bPDF<\/a><\/li>\n<li><strong>\u5e38\u89c1\u95ee\u9898\u89e3\u7b54\uff08FAQs\uff09\u3002 <\/strong>A guidebook of FAQs for people with MND and\/or their carers to help throughout the MND progression. (Courtesy of <a href=\"https:\/\/www.yayasanalsindonesia.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">Yayasan ALS Indonesia<\/a>.) <a href=\"https:\/\/mndmalaysia.org\/wp-content\/uploads\/2020\/10\/Kompilasi-Tanya-Jawab-Seputar-ALS-ALS-Frequently-Asked-Questions-compressed.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">\u67e5\u770b\u9a6c\u6765\u8bed\u7248\uff08BM \uff09PDF<\/a> | \u67e5\u770b\u82f1\u8bed\u7248\uff08EN\uff09 PDF\uff08\u5373\u5c06\u63a8\u51fa\uff09<\/li>\n<li><strong>\u76f8\u5173\u533b\u5b66\u7814\u7a76<\/strong>\n<ul>\n<li><a href=\"https:\/\/mndmalaysia.org\/wp-content\/uploads\/2020\/10\/Disability-profile-and-the-factors-affecting-functional-outcome-in-Malaysian-Motor-Neurone-Disease-population.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">\u9a6c\u6765\u897f\u4e9a\u8fd0\u52a8\u795e\u7ecf\u5143\u75c5\u4eba\u7fa4\u7684\u6b8b\u75be\u72b6\u51b5\u548c\u5f71\u54cd\u529f\u80fd\u7ed3\u679c\u7684\u56e0\u7d20<\/a><\/li>\n<li><a href=\"https:\/\/mndmalaysia.org\/wp-content\/uploads\/2020\/10\/ALS-Motor-Neuron-Syndromes-in-Asia.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">\u4e9a\u6d32\u7684\u808c\u840e\u7f29\u6027\u4fa7\u7d22\u786c\u5316\u75c7\u548c\u8fd0\u52a8\u795e\u7ecf\u5143\u7efc\u5408\u5f81<\/a><\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<h2><\/h2>\n\n\t\t<\/div>\n\t<\/div>\n<\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"<p>From the moment they are diagnosed and throughout their disease progression, people with Motor Neurone Disease (MND) will require palliative&hellip;<\/p>","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"_themeisle_gutenberg_block_has_review":false,"footnotes":""},"_links":{"self":[{"href":"https:\/\/mndmalaysia.org\/zh\/wp-json\/wp\/v2\/pages\/1708"}],"collection":[{"href":"https:\/\/mndmalaysia.org\/zh\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/mndmalaysia.org\/zh\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/mndmalaysia.org\/zh\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/mndmalaysia.org\/zh\/wp-json\/wp\/v2\/comments?post=1708"}],"version-history":[{"count":21,"href":"https:\/\/mndmalaysia.org\/zh\/wp-json\/wp\/v2\/pages\/1708\/revisions"}],"predecessor-version":[{"id":4423,"href":"https:\/\/mndmalaysia.org\/zh\/wp-json\/wp\/v2\/pages\/1708\/revisions\/4423"}],"wp:attachment":[{"href":"https:\/\/mndmalaysia.org\/zh\/wp-json\/wp\/v2\/media?parent=1708"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}