Facts
- Registered Name: Persatuan Penyakit Motor Neuron Malaysia (MND Malaysia) [Certificate No.: PPM-009-14-24032014]
- Organisation Type: Non-Profit Organisation registered with The Department of Registration of Societies Malaysia (Jabatan Pendaftaran Pertubuhan Malaysia or JPPM)
- Established Since: 2014
- Collaborating Hospital: Hospital Kuala Lumpur (HKL) MDT clinic. Learn more about how we help.
- Registered Member: International Alliance of ALS/MND Associations—a global network of MND associations that are united in the fight against MND.
About Us
MND Malaysia is the only Non-Profit Organisation in Malaysia that supports the Motor Neurone Disease (MND) community. The organisation was established to serve as a platform for MND—a platform that goes beyond bringing awareness to the community of people with MND and informing the public about MND. Learn more about how we use our platform to help.
Registered in 2014 as Persatuan Penyakit Motor Neuron Malaysia, MND Malaysia collaborates with service providers to bring home-based services to the MND community.
The organisation was formed by an esteemed group of medical professionals who are pioneers in their respective fields of Neurology, Palliative Care, and Neurorehabilitation. Learn more about the team.
Our Vision
To realise a world without MND. What is MND?
Our Mission
To raise awareness of MND, introduce multidisciplinary care to the MND community, and empower the lives of people with MND through compassionate care.
Our C.A.R.E. Values
Compassion & Commitment. To be compassionate with our commitment.
Attitude & Aspire. To lead with an attitude that aspires to challenges.
Respect & Respond. To respect each other with our response.
Excel & Excellence. To excel with excellence in our duties.
Medical Advisors
Professor Dr Goh Khean Jin
Medical Advisor
Specialities
- Neurology (Clinical Neurophysiology and Neuromuscular Disorders)
Experience
Present:
- Professor and Head, Division of Neurology, Department of Medicine, University of Malaya Medical Centre (UMMC)
- Medical Advisor at MND Malaysia
- Executive Board Member at the Asian and Oceanian Myology Centre (AOMC)
- Fellow at Academy of Medicine of Malaysia
- Fellow at the Royal College of Physicians of Glasgow
Past:
- 2009 – 2014: Head of the Department of Medicine at University of Malaya, Malaysia
- 2007 – 2011: President of the ASEAN Neurological Association (ASNA)
- 2002 – 2006: President of the Malaysian Society of Neuroscience (MSN)
- 2000 – 2004: Associate Professor and Consultant Neurologist at University of Malaya, Malaysia
- 1999 – 2000: Commonwealth Fellow at the Department of Clinical Neurology at University of Oxford, United Kingdom
- 1995 – 1999: Lecturer and Neurologist at University of Malaya, Malaysia
- 1993 – 1995: Specialist Registrar in Neurology at Tan Tock Seng Hospital, Singapore
Education
- MRCP (UK), FAMM, FRCP (Glasgow), MBBS (Singapore)
Professor Datin Dr Lydia Binti Abdul Latif
Medical Advisor
Specialities
- Neurorehabilitation (Neuro Recovery; Non-Invasive Brain Stimulation Rehabilitation)
- Rehabilitation (Cardiac Rehabilitation)
- Innovations in Prosthetic and Orthotics (Innovations for Low-Cost Prosthetics)
- Medical Acupuncture and Pain (Medical Acupuncture for Neuromusculoskeletal and Pain Management)
- Neurorehabilitation (Neurorehabilitation in the area of Neuromodulation, Plasticity and Non-Invasive Brain Stimulation)
Experience
Present:
- Medical Advisor at MND Malaysia
- Chief Medical Officer at ReGen Rehab Hospital, Malaysia
- Coordinator for Dept CME activities, Faculty (Since 2005)
- Lecturer in Charge for Prosthetic and Orthotic Hospital Technical Committee, Faculty (Since 2003)
- Research Coordinator, Faculty (Since 2003)
- Coordinator for Part 1 and Part 2 Masters Exam, Faculty (Two exam sessions per year since 2003)
Past:
- 2017 – 2019: Committee Member of External Auditor for Science and Technology at University Malaya, Malaysia
- 2017 – 2018: Chairman/Head of MQA Rehabilitation Medicine Specialist, National
- 2016 – 2018: Committee Member at International Society of Physical and Rehabilitation Medicine
- 2016 – 2018: Head of Department, Rehabilitation Medicine, Faculty of Medicine
- 2016: Head of Department, Rehabilitation Medicine, Faculty of Medicine
- 2014 – 2016: Committee Member at Malaysian Association of Rehabilitation Physicians (MARP)
- 2013 – 2016: Chairman at International Society of Physical and Rehabilitation Medicine (ISPRM) 10th World Congress
- 2012 – 2014: Council Member at International Society of Physical and Rehabilitation Medicine (ISPRM)
- 2012: Head of Department, Rehabilitation Medicine, Faculty of Medicine
- 2012: Acting Head of Department, Rehabilitation Medicine, Faculty of Medicine
- 2007 – 2009: Member at International Society of Physical Medicine And Rehabilitation
- 2006 – 2009: Member at World Federation for Neurorehabilitation
- 2005 – 2009: Member at International Society of Prosthetic and Orthotic
- 2008: Coordinator for Research Symposium at University Malaya (UM and Uni Sydney Research Symposium)
- 2004: Acting Head of Department, Faculty
- 2004: Penggubal Soalan PTK, Faculty
Education
- Research Fellow (Neuromodulation), Harvard Medical School, HARVARD UNIVERSITY, CAMBRIDGE
- Grad Cert Med Acu, HARVARD UNIVERSITY, CAMBRIDGE
- Masters Rehabilitation Medicine, UNIVERSITY OF MALAYA (UM)
- Lower Limb Prosthetic UNSW, UNIVERSITY OF NEW SOUTH WALES, AUSTRALIA
- MBBS, UNIVERSITY OF MALAYA (UM)
Professor Dr Loh Ee Chin
Medical Advisor
Specialities
- Palliative Medicine
Experience
Present:
- Medical Advisor at MND Malaysia
Past:
- Associate Professor at the Department of Medicine, Faculty of Medicine, University of Malaya, Malaysia
- 2011: Member of Medicine of Malaysia
- 2010: Senior Lecturer and Consultant for Palliative Medicine at University Malaya, Malaysia
- 2008 – 2010: Clinical Specialist at Pusat Perubatan University Malaya (UMMC), Malaysia
- 2004 – 2008: Founder and Medical Director at Kasih Hospice Care Society, Malaysia
- 1999 – 2003: Palliative Care Doctor at Hospice Malaysia
- 1998 – 1999: Senior Medical Office at Hospice Care Association
- 1996 – 1998: Resident Medical Officer at Cheras Geriatric Center
- 1996: Medical Officer at Subang Jaya Medical Center
- 1995: Medical Officer at Hospital Seremban
- 1993 – 1995: Medical Officer for Health at Ministry of Health, Port Dickson, Malaysia
Education
- 2007: Member of Royal College of Physician (Ireland), Royal College of Physicians, Ireland
- 1998: DIP (Palliative Medicine), University of Wales Australia, University of Wales College of Medicine, Cardiff
- 1991: DIP (Sports Medicine), The Canadian Association for Health Physical Education A
- 1991: MB BCH BAO, National University of Ireland
Prof Madya Rabani Remli
Specialities
- Internal Medicine & Neurology
Experience
Present:
- Consultant Physician & Neurologist at Hospital Canselor Tuanku Muhriz
- Medical Advisor at MND Malaysia
Education
- Medical Degree, University of Sheffield, UK
- Doctor of Internal Medicine, National University of Malaysia
MND Malaysia Team
Our team provides support & services to the MND community nationwide such as:
- Education & information about MND
- Relief Caregiver program
- Non-invasive ventilator equipment
- Home base patient care
- Annual Family gathering interactions
- Home visits
- Family portraits
- Public awareness & publicity events
- Recruitment of volunteers – Want to volunteer?
Benny Ng Ah Thiam
Chairman
Experience
- Present:
- Chairman at MND Malaysia (2023-2025)
Past:
- Past Chairman and Advisor at MND Malaysia (2021-2023)
- 2015-2019: Chairman at MND Malaysia
- Extended services into the healthcare industry providing medical concierge services to international patients
- 1991: Life Insurance Agent at one of the leading insurance company
- Started working in the insurance industry after tertiary education.
Soo Cheong Futt
Vice-Chairman
Present:
- Vice-Chairman at MND Malaysia (2023-2025)
Past:
- 2021-2023: Chairman at MND Malaysia
- 2011: Industry and Trade Committees of KLSCCI and KCCCI
- 1999 – 2011: Honorary Secretary, Expertise Resource Association (ERA)
- 2002: A co-opted member of the HRD SME Committee
- 2002: International Trade and Industry Committee, ACCIM
- Director of the Malaysian Textile Manufacturers Association (MTMA) and the Malaysian Textile and Apparel Centre (MATAC)
- Director of the Industrial Research Directorate (NPC)
Education
- 1979: Diploma in Industrial Engineering (REFA Germany)
- 1969: B. Sc. (Hons), University of Malaya
Kee Sook Yean
Honorary Secretary
Experience
Present:
- Honorary Secretary at MND Malaysia (2023-2025)
- Entrepreneur in C&S Construction (Since 2005)
Past:
- 2021-2023: Honorary Secretary at MND Malaysia
- 2001 – 2005: Sales & Marketing in M& E Engineering (Design & Build in Air Quality Control Plant)
Education
- BSc. Hons. Biochemistry, Universiti Kebangsaan Malaysia
Teoh Yong Hong
Honorary Treasurer
Experience
Present:
- Honorary Treasurer at MND Malaysia (2023-2025)
- Entrepreneur in Accountancy industry
Lim Peng Seng
Committee Member
Experience
Present:
- Committee member at MND Malaysia (2023-2025)
Past:
- 2021-2023: Committee member at MND Malaysia
Dr. Fazlina Ahmad
Committee Member
Experience
Present:
- Committee Member at MND Malaysia (2023-2025)
- Medical doctor at Hospital Sultanah Bahiyah, Kedah
Past:
- 2021-2023: Committee Member at MND Malaysia
Ong Eng Teong
Committee Member
Experience
Present:
- Committee member at MND Malaysia (2023-2025)
- Sales Director at Interitech Sdn. Bhd. (Industrial Software Applications)
Past:
- 2021-2023: Honorary Treasurer at MND Malaysia
Education
- 1982: Member of Association Of Certified Professional Managers (UK)
- 1982: B. Computing & Data Processing, University of Bradford (UK)
Len Meng Fui
Advisor
Experience
Present:
- Advisor at MND Malaysia (2023-2025)
- Entrepreneur in Train the Trainer industry
Leow Hoay Hoay
Admin & Coordinator
Sharon Low Mei Mei
Admin Assistant
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